Lucien’s Story
Eleven-year-old Lucien was just like any other child, enjoying sports and even earned the nickname “Speedy.” He was looking forward to learning how to “skate ski,” particularly because his older brother was the teacher of the class. During his first lesson Lucien kept falling and his brother knew something was not right. Lucien was diagnosed with a rare genetic condition, that starts with vision loss and involves loss of balance and coordination. It has been a gradual process realizing what this means for Lucien’s future and has brought his family closer. Lucien’s incredible resilience and strength gives everyone an appreciation of living each day with more purpose… Read More